Balancing Burden and Privilege

During 2023, I conducted several research studies that involved interviewing participants with serious medical conditions.
Research such as this isn’t easy. Participants can be depressed and distracted, and might be lonely and in pain. They tend to view these interviews, not unreasonably, as an opportunity to unburden themselves to a sympathetic stranger.
These conversations can be emotional and intense. I’ve had participants tell me things they have never said to anybody else. A day of this type of work is tiring, and a week is thoroughly exhausting – with the experience leaving you physically and mentally spent. In fact, if you don’t feel that way after several days of this, you’re probably doing it wrong.
At times like this, it’s easy to focus on the load you’re carrying – serving as an interlocutor between patient and client, as a source of insight to the client, and as a confessor and confidant to the patient. This is a hard set of roles to play, and it’s easy to feel overwhelmed.
However, it’s important to remember that conducting such research is a privilege. A privilege for clients to trust you with their research. A privilege that participants are willing to make themselves vulnerable to you.
The thing is, burden and privilege are two sides of the same coin – you can’t have one without the other. This principle applies to most aspects of our lives. Nursing a loved one through a period of infirmity is both a burden and a privilege. Every civil right enumerated in the Bill of Rights to the US Constitution carries a corresponding responsibility.
Just think about free speech – one of the fundamentals of a free society. You only need to spend a little time on social media to see what happens when this privilege is abused. Participating responsibly on social media platforms can feel onerous, but it’s part of the bargain.
Anytime you shoulder a burden, it means that somebody is trusting and depending upon you. In qualitative research – as in any consultative field – trust is essential to doing your job.  If clients and participants don’t trust you, there isn’t much you can accomplish. So, the ability to earn trust is a key factor that separates experienced, professional practitioners from beginners and amateurs.
So, when facing a burdensome responsibility, ask yourself why you should feel fortunate  – and find the privilege contained within.